Any fibromyalgea sufferers?

**heartofmine** · 06-17-2008, 01:39 PM

I've had it for several years and I'm suffering really bad with it today. I also have rheumatoid arthritis.

**tammy8701** · 06-17-2008, 02:15 PM

yes l have it to l found out in the year of 2004 that l have it and l know how you feel the weather here is damp and cold and makes me worst and so does stress not that we ever have that lol

**Moor** · 06-17-2008, 02:29 PM

i have it.
i have been having problems diong things today.
i also have psoriasis to go along with it.

**Lady_V** · 06-17-2008, 07:31 PM

I debated on to respond or not...

I was diagnosed January 2, 2001 (Happy New Year eh?) and according to my records, I have had it since 1988. My doctors at the time couldn't 'see' anything wrong, so I must be just a 16 year old junkie looking for a fix... grrr

I have FMS. I live with FMS. I deal with the assorted extras that come with FMS. I do not suffer from it. I live with it.

Everyday is a physical challenge. I can predict the weather without even opening my eyes. I have next to no seretonin, so you can imagine what my sleeping patterns must be like.

I am diagnosed... but untreated. My health insurance changed and I am unable to seek proper treatment from the specialists and the doctors on my current insurance think FMS is a case of major Mass Hysteria... and that my fellow fibromites... is a quote.

Why don't I just change doctors? I have... I have actually gone to all the doctors that actually accept my crappy insurance and I am starting to think that they all belong to the secret anti-fms club. They would rather say I have 15 unrelated medical problems than to say I have FMS.

I applied for SSDI on the advise of the doctor that diagnosed me... no shocker I was denied, I think it's pretty routine to deny everyone when they first apply. I haven't pursed it though... I am still breathing and with the other medical problems I have and impending surgery, I couldn't work anyways.

**quiltergirl** · 06-17-2008, 07:51 PM

My husband has it and is doing very well overall. We are in the middle of monsoon season here in the midwest, but he is still doing much better than in the past.

He has pretty much been through it all -- doctors who didn't believe anything was wrong, doctors who wanted to prescribe antidepressants, doctors who did believe him but just wanted to throw drugs at the problem. He also has TMJ and has had people wanting to do surgery on his jaw.

When I first met him it was very severe. He kept working through it all but there have been times that when he wasn't at work he was in bed.

What we are doing now that is finally working is a combination of diet, supplements, exercise and stress control/meditation, etc. He has also learned the hard way that the position of his head when he sleeps and the pillow he uses are very important for him.

So all I can really say is don't give up hope and keep looking for what works for you.

**EmilyD** · 06-17-2008, 11:30 PM

Yes, it is one of my many medical illnesses.

I have a great doctor who diagnosed it about 3 years ago. He is an osteopath, which helps alot. They are taught whole body care. I didn't even know he diagnosed me with it until one day he said ... "I know it is very hard to exercise with the fibromyalgia, but you need to." I asked the nurse to find where he made the diagnoses and she did .. during my yearly pap, breast, and physical exam .. three months before that. The subsequent biopsy kinda trumped the info though.

Or maybe I didn't "hear" him because of the cancer diagnoses ... doesn't matter now either way.

I don't take anything for the pain. There is a new "pill" out but I would have to pay at least $50.00 a month for it because there is no generic. If I had the money to pay anymore for meds I would use it on something else.

I had a physical therapist tell me he didn't believe in fibro .. I left and never went back.

My thoughts are with you and hope that you can find someone who will treat you properly.

**Jeanna** · 06-18-2008, 01:45 PM

I have it. It sucks. Nuf said.

**banana** · 06-18-2008, 05:16 PM

I have it. It took a long time for me to get diagnosed and a long time after that trying different medications.

We finally found meds that work very well for me. I havent had a major flare since February, knock on wood. I also had to learn not to over do it, which for me was very hard to do.

**heartofmine** · 06-18-2008, 07:21 PM

I'm sorry to see (and I know that is odd since I asked the question) that there are so many other fibro sufferers here. Like you all it took a while for a diagnosis. I don't have health insurance at all so mine is going untreated also. I have good days and bad days.

**pita1213** · 12-30-2009, 08:56 PM

another one dealing with FMS. got the dx in '06 i think. it's a foggy brain day so i can't remember for sure. could be '05. some days are better than others.

**MyMelody** · 01-23-2010, 02:06 PM

Both fibro and rheumatoid arthritis here.

**Trishagirl** · 01-23-2010, 02:17 PM

I don't have fibro but a friend of mine has it. I read that Dr. Wallach's Berry burst is great for it you can find it on his website & they have testimonials JFYI www.drwallach.com He's a great md and also a vet too. has a radio show and many followers.

**alotofgooddeals** · 01-23-2010, 02:22 PM

i am constantly tired....have flareups with pain...this past week i had a pain in my leg below my knee and it only hurt when moved it..i tried pressing on it and nope no pain just a dull ache when i would sit there and then a sharp pain when i moved it... my legs most days have some type of pain in them...i was diagnosed with costrocondritis when i was alot younger which means inflammation in your chest walls..i have days when the pain in my shoulder areas radiate down my arm and almost make them feel numb.. the pain has been bad enough i thought i was having a heart attack....

**Nana2two** · 01-23-2010, 04:57 PM

I also have it. Suffer more during the winter and rainy season.

**MyMelody** · 01-27-2010, 07:38 AM

The rain bothers me more than just the cold. When I am cold, I get stiff, but the rain causes all-over tenderness and pain that I just can't get rid of. I get weak and feel woozy almost like I have the flu. I sleep on my heating pad every night (except in summer when it's just too hot), and it is a God-send.

In the past 3 weeks, I have been going to exercise to hopefully help my sleeping and overall energy levels. I've found that when I do muscle toning, I can't just concentrate on one body area that day, e.g. an "arms" day or "legs" day -- I have to do a little of both so that I don't cause too much pain. Then, the next day, I do different exercises for the same body parts, so that I never do the same exact "move" two days in a row. I take ibuprofen before and after I work out, too. I hope this helps someone who may be struggling with how to exercise while having these disorders.

Has anyone found any vitamin or herbal supplements that seem to help? Please post!