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  1. 03-11-2011, 11:12 PM #1
    many houseapes
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    Default Lobectomy/ RAI Advice Needed

    I am unexpectedly facing this.....anyone else ever had to go through this??? Can anyone tell me what to expect?? From the research I have done, I am dreading the isolatation from my family more than I am of the surgery/illness. If anyone feels comfortable sharing their stories I would love to hear them. Thanks
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  2. 03-11-2011, 11:34 PM #2
    mauimagic
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    I have no info to share with you - but am sending prayers, hugs and aloha. Please keep us informed when you can.
    Travel light. The baggage of the past can only hold you back.




    “Decluttering isn't just simplifying your life. It's having a vision, setting new priorities and using those notions to get rid of obstacles.”
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  3. 03-12-2011, 07:38 AM #3
    Daisygirl
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    My best friend had a radiation treatment last summer - indeed the hardest part for her was the isolation. She also injured her back at the same time, which, of course made everything worse.

    Her advice is this: "It won't be easy but try to set aside some things that you will enjoy that are difficult to do with the kids around. Store up some books that you are just dying to read. Bring your laptop and do some research and projects that you haven't had time for. Reserve some good movies that might not be family appropriate. Be prepared for the isolation - you will feel it - but you will get through it and treasure your family all the more when you are able to be with them."

    From me: Prayers, hugs, and concern. Take care!
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  4. 03-12-2011, 08:46 AM #4
    Spirit Deer
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    I'm sorry to hear you are facing this situation. I don't have any advice about the treatment itself, but from you screen name I gather you have a lot of kids who most likely depend on you. My only advice is, if you're up to it or can be nearby to direct others, get some meals prepped and frozen for your family. Knowing they're well-fed while you can't be with them should make things a bit less stressful and worrisome for you during your recovery.

    Good luck with your procedure.
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  5. 03-12-2011, 07:10 PM #5
    Luv2BeFrugal
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    Just wanted to send you hugs!!
    Kace - married to Dh 12 years

    Love to

    Full-time homemaker, part-time worker, college student. Always pinchin' pennies!
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  6. 03-12-2011, 09:15 PM #6
    HappyMama
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    Just want to send you and blessing! Good luck with your procedure and keep us updated.
    *Angel*

    Dave R. Plan
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  7. 03-12-2011, 09:40 PM #7
    Rhiamon
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    Sending you hugs!
    2012 Challenges
    Pay way down my CC~2,721.51
    ER~0/500 (starting low because of low income)
    loose weight goal is 40
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  8. 03-13-2011, 10:10 PM #8
    DixieJ
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    My husband had the lower lobe of his right lung removed 4 years ago. The first 3 days after surgery were pretty rough, but after that he improved greatly each day. I'm thinking that I have read that this procedure has been improved since he had his surgery. If you would like to ask any questions, feel free to ask.

    Sending hugs your way!
    Dixie Jean
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  9. 03-13-2011, 10:14 PM #9
    nodmicks
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    Sending hugs and prayers!
    ~July 19 saving goal for event $104/$1000
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  10. 03-14-2011, 11:06 AM #10
    jas
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    sending hugs and prayers your way!
    Married 22 years to Mark
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    SAHM in Florida

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  11. 03-14-2011, 07:23 PM #11
    Momto5RN
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    when you say lobectomy do you mean lung or are you talking thyroid ( which makes more sense with the RAI to me ) ??




    what kind of computer do you have - do you have more than 1 in the home.
    if so any webcams ?
    you can play games from other rooms etc on the computers - scrabble etc .

    i found this message board on facebook when doing a search on the isolation time to refresh my memory
    they had a post about the isolation time etc

    Thyroid Cancer Awareness | Facebook
    *~Debbi~*
    Happily Married Mom to 5 ; PT Home Care RN
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    “Fear less, hope more; Eat less, chew more; Whine less, breathe more;
    Talk less, say more; Love more, and all good things will be yours”
    Swedish Proverb

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  12. 03-14-2011, 11:06 PM #12
    many houseapes
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    Mom to 5 its the thyroid...& I don't understand...all of my thyroid tests came back normal and I am still my very energetic self.
    Thank you for the info I also plan to do alot of crocheting if I have to go through RAI.
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  13. 03-14-2011, 11:08 PM #13
    mauimagic
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    Please keep us updated!!
    Travel light. The baggage of the past can only hold you back.




    “Decluttering isn't just simplifying your life. It's having a vision, setting new priorities and using those notions to get rid of obstacles.”
    — Peter Walsh
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  14. 03-15-2011, 01:21 PM #14
    many houseapes
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    Quote Originally Posted by mauimagic View Post
    Please keep us updated!!
    I surely willYa'll are like family to me
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  15. 03-15-2011, 07:53 PM #15
    Daisygirl
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    Thyroid cancer is the kind my best friend had too. She is completely cancer free now, btw.

    She also never had any symptoms that she noticed. When she was pregnant with her second child, she went to the dentist who noticed something unusual. He sent her for tests and they discovered she had cancer. She had to wait to deliver her baby before she could be treated. They brought little Noa early via C-section and two weeks later she had her surgery. She had a second surgery and then radiation and that was it. Not that 3 surgeries in 6 weeks is minor, of course.

    Of all the cancers in the world, the doctors told Sandra this was the "best kind." It is highly treatable and has the best outcome.


    My prayers will be with you through this. Feel free to PM me if you have any questions. (((hugs)))
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