Sorry I haven't been around

**voodidit** · 07-05-2005, 03:51 PM

I just wanted to apologize for not posting and let everyone know what's been going on.

I am exhausted all the time right now because of prepping for my RAI scan on the 14th. Hopefully I won't need more radiation and will be able to get back on those meds and will feel a lot better.

Also, last month when I saw my neuro for my regular MS appointment he asked me to be a part of a brand new clinical study, I spent all day at the hospital and went back again on the 1st for another full day of Mri's, bloodwork and neurological tests. I also found out that day if I would stay on the Rebif or change to another drug for the study.

I changed..lol...now instead of 3 shots a week I have to do them every day, but so far except for the first shot I don't have any side effects like I was having with the Rebif so I guess it was worth it. It's a 3 year trial and as long as I stay in they pay for all my meds, my neuro visits and $25 everytime I make a regularly scheduled trip to the dr.  I will have to go down at least every 3 months for evaluation or if I have any flares.

I may be a little quiet until the 14th but hopefully after that, my concentration will be back to normal and I can participate more. You may see this posted at other boards but it's easier for me to copy and paste it than write it all over and over again..lol.

I want to thank all of you who have emailed me with your support, I love you all.

**Mom23boys** · 07-05-2005, 04:32 PM

Angie!

Thanks for the update. I hope the treatments help.

**Missy** · 07-05-2005, 04:47 PM

Thanks for the update Angie, I have been wondering what you have been up to.

**mom2matty** · 07-05-2005, 05:31 PM

Angie!

**SewCrafty** · 07-05-2005, 06:20 PM

Oh Angie, I am so hoping you don't have to have anymore radiation and you can get back on your meds and feeling better!

I'm here if you need me and don't worry about posting, you post when you feel up to it.

**Darlene** · 07-05-2005, 07:51 PM

I'm so hoping for the day you don't have to think about any of this stuff Angie. Hope the study helps and the radiation days are behind you. Hope tonight & the days to come find you pain and care-free.

**pita1213** · 07-05-2005, 09:39 PM

hiyas angie! thank you for taking the time to update us. i hope things get better for you really soon. take it easy if you can.

**Julia Kimber** · 07-06-2005, 08:31 AM

Hi Angie, hope the new meds help and you feel better soon!

Julia

**seadream** · 07-06-2005, 09:21 AM

hope the meds continue to work for you

**Michelle** · 07-06-2005, 09:34 AM

Sorry to hear that you're not feeling well...but I hope that the new treatments work for you. Thanks for updating us.

**PrairieRose** · 07-06-2005, 09:58 AM

Still hoping for a huge diffenence in the new meds Angie

**voodidit** · 07-13-2005, 11:22 PM

Tomorrow is the scan and I'll know Friday if I have to have more radiation, keep your fingers crossed!

**KKCondrey** · 07-13-2005, 11:31 PM

Keep us posted. I'll call you sometime this weekend or you can call me if you want to.

Love ya

(your brother and niece say hi)

**voodidit** · 07-15-2005, 06:52 PM

Well, I don't have to have any radiation this time around! So now I can get back on my thyroid meds and hopefully in a few weeks I'll feel a lot better than I do now!