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01-09-2009, 09:44 PM #16
Funny how many doctors miss the sleep apnea the first time around.
My DH had to do the test twice, after the first test coming back really bad they didn't belive he had it that bad. He also can't nap or lay down at all without the machine on. My biggest fear is the power going out! The doctor that did the first test said eveything was fine, and then we seen a new doctor that ask for old records. Right in the records its said "severe sleep apnea", he stopped breathing, totally stopped at times to the point where they didn't even let him finish the test without putting the machine on him to force the air. I am so thankful we seen the new doctor, we owe him more than can be paid for saving my DH's life.
Fibro is a nasty syndrome, and many people look at you like you are a freak. They have no clue what fibro patients suffer! I hope you soon get to feeling better and find something that gives you a little relief!
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03-28-2009, 03:06 PM #17
I was diagnosed almost 2 years ago. It was rough going at first. Finally found a good dr and we tried a lot of different pain killers and medication. I am happy to say that I have not used any painkillers for 6 + months. I also stoped taking my daily medication and now am only taking herbal supplements. I FEEL GREAT! I was on nortriptyline and I put on a lot of weight.
Now I am taking Sam-e 400 mg, Calicum 600 mg x 2, one multivitamin,
Vitamin D-3 2,000 IU, Ubiquinol 50 mg and Acai berry veggie caps 1000 mg. I also try to remember to take 2 fish oil pils a day, although I dont always remember to take the fish oil. I am still having trouble sleeping so I take 2 mg of melatonin before bed. I also lost 27 lbs.
I finally feel like my old self again!
married to my honey
mommy to one handsome teenager
mommy to 2 furbabies
no consumer debt, zero, zip nada
mortgage - 56,140.96 pay off date 11/2017
car fund 5,000
heating unit 0
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03-28-2009, 08:32 PM #18
I hope you can find something to help relieve your pain. I have fibro and CFS so I know what you all are talking about. My worst time is when the weather turns cold, I hurt so bad then.
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03-28-2009, 09:01 PM #19Registered User
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I also say hot showers. And make some heat wraps (get two tube socks and fill with rice and tie the end shut or sew it shut.) Also exersizing in a heated pool has helped my dd alot.
I also read that someone was suffering from headachs along with the fibro you should look into trying topmax. This has helped with both my fibro pain and my migrains/headaches.
I would also sugest some oil of wintergreen lotion for the muscle aches this costs like $12.00 a bottle a bottle lasts a long time.
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03-28-2009, 09:32 PM #20Registered User
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A friend of mine who has FM takes hot baths and has hot water bottles and heating pads. Other than that I can't suggest anything else but I hope you get relief.
Dh Bob
FIL 
DS (21) at Lakehead U - go Thunderwolves!

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03-30-2009, 04:47 PM #21
I have fibro and CFS and I take serrapeptase, it is an enzyme. It is wonderful stuff. It has taken all my pain away and my fatigue. I can sleep at night now too. It isn't expensive and there are no side effects and it does not interfere with any medications. Good luck, I know how you feel.
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04-14-2009, 10:27 AM #22
good morning all..

Im new here and I am so glad I found a support place where others understand how we with FM live.
soumds like a lot of caring and understanding here.
I wish I could offer some advice for pain relief myself. I use pain meds and zanaflex. they help enough usually to keep me sane.
although some ays when I have a bad bad flare, the pain meds dont seem to help, but I dont want to go without in case it would be more pain without them.
it is a miserable thing to have for sure.
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04-15-2009, 12:19 AM #23
wrong thread...opps
Last edited by redeme; 04-15-2009 at 12:20 AM. Reason: wrong thread
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04-19-2009, 04:52 PM #24
I have Fibro, CFS and Trigeminal Neuralgia. For me heat helps the most with the pain from fibro. My hips get the worst so I just sit on the heat pad every evening and I do not get as stiff and sore. I also try to do light exercise (yoga, Chi Gong) daily to keep the muscles moving. Naps really help too! I recently started seeing an acupuncturist and it has helped me tremendously he did several tests on me to analyze the vitamins and minerals in my system and found that I was extremely deficient in many of the crucial vitamins. He started me on several supplements and I swear I feel at least 50% better after just 6 weeks. He said I was so messed up though that it could take up to a year to feel 90% better than when I started.
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04-20-2009, 01:57 PM #25
I too have fibro and have had it for about 12 years. I take Advil every morning and Bayer at night. When I'm having a bad flare up (I'm in pain every day but when it gets to where I can't stand it) I take pain meds and muscle relaxer at night. I don't know why but this is my worst time of the year for pain. There are some things I won't even attempt to do, like wallpaper, or I know I will suffer. I also do exercise regularly even when I don't feel like it. Simple exercises and a lot of stretching. It did take me some time to figure it out but I have a bedtime routine that helps me get to sleep. I try not to watch anything disturbing on TV before I go to bed, but I read in bed for about 20 minutes and I fall right to sleep. Where before I would lie awake for 2 hrs. I don't get a full night sleep as pain usually wakes me up.
My daughter just said to me this morning - "Mom why are you so mad in the morning?" I felt bad. I am in a lot of pain in the morning and I go straight to take Advil as soon as I get out of bed. I have to wait about 20 minutes before it starts to work. I will have to get up 1/2 hour before her so she doesn't think I'm always mad in the morning.
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