I have a Interstitial Cystitis and there are many support groups in the US, but there isn't one in my area. My doctor has mentioned a few times that I should consider starting a support group in my area and I am seriously considering it now. I have made initial contact with some national organizations, but I have yet to talk with anyone. I would be interested to hear the experience of others and the time commitment involved in the very beginning. I would have the support of my doctor and there is a pretty good chance that my local hospital would even help out too. I would really appreciate any information that you can give me. Thanks!