Special need kids...
Results 1 to 15 of 15
  1. #1

    Join Date
    Jun 2002
    Posts
    849
    Post Thanks / WTG / Hug
    Rep Power
    0

    Unhappy Special need kids...

    It has taken me a while to beable to talk about my youngest Dd here on the boards but this time of year I get kind of sad
    My youngest Dd Sara was born with a very rare disease that noone knows anything about. I raised her for only the first couple months of her life then we spent weeks in the hospitals. She was released again but only for about another week until I had to take her back & tell the dr's I could no longer care for her That was the last time I brought Sara home
    She spent months going back & forth to the 2 hospitals around here as the dr's tried to figure out what to do for her. It took them 3 times to diagnose her with this disease because it is so rare, so rare infact that there are only 49 cases that are only similar to what she has they told me she is the ONLY one in the world with this type & they didn't know anything else.
    They said if she lived to 1yr she would be ok, she did but wasn't then they said that if she lived to be 8 she would out live the disease & be able to live a "normal" life.
    Sara is now 18 years old but mentally only 2 years old because of the damage done to her brain. She can no longer speak or laugh So to all you parents who are fortunate to be raising your special children you really are truly blessed & I would give anything to beable to see my little girl again I know someday I will but it doesn't take away the sadness of not knowing how she is from me or her big sister.

  2. #2

    Join Date
    Nov 2002
    Posts
    5,194
    Post Thanks / WTG / Hug
    Rep Power
    0

    Default

    Summercat, your post leaves me kind of speechless, but I need to respond. Thank you for your post and for trusting us enough to share in the intimate parts of your life. I am sorry that life has thrown this curve. I know that this may be so hard for you to understand, but your hardships may just be what it takes for others to realize how precious their children really are. I wish you and your family the best. I will keep Sara in my prayers. Thanks for sharing her story with us. God Bless you.

  3. #3
    Registered User Mom23boys's Avatar
    Join Date
    May 2002
    Location
    Texas
    Age
    51
    Posts
    19,004
    Post Thanks / WTG / Hug
    Rep Power
    43

    Default

    Summercat, your story was very eye opening to all parents. Each day we should all be thankful for what God has given us. I will be praying for Sara and her family.

  4. Remove Advertisements
    FrugalVillage.com
    Advertisements
     

  5. #4
    Registered User captclearance's Avatar
    Join Date
    Apr 2002
    Location
    Illinois
    Age
    59
    Posts
    8,337
    Post Thanks / WTG / Hug
    Rep Power
    27

    Default

    I am so sorry that you have all of this on your plate !
    I'm left a little speachless also, I don't know what it's been like for you ..... I'm glad you feel safe to share this with the people here that care about you !
    {{{{{{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}}}}}

  6. #5

    Join Date
    Dec 2002
    Posts
    2,594
    Post Thanks / WTG / Hug
    Rep Power
    0

    Default

    to you and your and for sharing your special child with us.

    Your share is honest, courageous and loving.

    Special needs children are very hard work but indeed special.

    May your love for your child keep burning in your heart and bring you peace in the knowledge that you are doing what only a loving mother can do, finding the best available care for your child and loving her deeply.

    Thank you for opening your heart and my eyes, may God grant you serenity.

  7. #6
    Registered User
    Join Date
    Jul 2002
    Posts
    23,290
    Post Thanks / WTG / Hug
    Blog Entries
    15
    Rep Power
    49

    Default

    Oh my, my heart goes out to you. Your so courageous to have posted this. I want to thank you for doing so. As a parent of 3 special needs kids, I know your heartache. It must be magnified even more so in not knowing how Sara is doing.

    She will be in my prayers. If you need to share, pm at any time. to a very special lady.

  8. #7

    Join Date
    Nov 2002
    Posts
    11,481
    Post Thanks / WTG / Hug
    Rep Power
    0

    Default

    You have me in tears here. I know that your heart is just breaking for your precious Sara. I'm so sorry that you have had to go through this. Please know that my love, prayers and support are right there with you!

  9. #8

    Join Date
    Jun 2002
    Posts
    849
    Post Thanks / WTG / Hug
    Rep Power
    0

    Default

    Thank you ladies for letting me share this with all of you.
    I think the hardest thing is not knowing how your child is doing & I admire parents who are able to take care of children who are special because it is a challenge & to be so giving & caring as to be a foster parent of children whose parents are unable to care for them they are special too. Unfortunately due to my own birth defect I had no other choice but to give Sara to a family who would treat her as if she were their own & the first family did that for the first 13 yrs of her life & now she's in a new home I hope & pray that they too are treating her with love & kindness.

  10. #9
    Registered User SewCrafty's Avatar
    Join Date
    Jul 2002
    Location
    Upstate NY
    Age
    61
    Posts
    15,917
    Post Thanks / WTG / Hug
    Rep Power
    35

    Default

    Summercat

  11. #10
    Registered User voodidit's Avatar
    Join Date
    Aug 2002
    Location
    North Carolina
    Age
    53
    Posts
    5,659
    Post Thanks / WTG / Hug
    Rep Power
    24

    Default

    Thank you for haring this with us. I have a cousin who is around 50 now and basically the same way, he doesn't speak, walk and can't do anything for himself. But he's healthy and always seems to be happy.

  12. #11
    Registered User paelthom's Avatar
    Join Date
    Feb 2002
    Location
    Virginia
    Posts
    4,379
    Post Thanks / WTG / Hug
    Rep Power
    23

    Default

    Summercat, my heart goes out to you. I am sending you hugs.

  13. #12
    Heather Bob
    Join Date
    Jan 2003
    Posts
    7,312
    Post Thanks / WTG / Hug
    Rep Power
    26

    Default

    Originally posted by hmsclmom
    You have me in tears here. I know that your heart is just breaking for your precious Sara. I'm so sorry that you have had to go through this. Please know that my love, prayers and support are right there with you!

  14. #13
    Founder Sara Noel's Avatar
    Join Date
    Apr 2001
    Location
    Michigan
    Age
    51
    Posts
    19,023
    Post Thanks / WTG / Hug
    Blog Entries
    10
    Rep Power
    61

    Default

    I'm sure you've read bits and pieces about my Zachary. He is what makes me special. I am so very thankful that I am able to care for him and that his challenges aren't as serious as many others.

    Being a mom is a profound thing and being a parent of a child with special needs is really about the most profound thing I have ever experienced.

    My heart aches to know you carry this daily in your heart and on your mind. I can only hope that you know that you made the best decision you could. I'm sure you are concerned about her care in her new home. I believe all you can do is have faith and continue to live your own life the best that you can.


  15. #14
    Registered User PrairieRose's Avatar
    Join Date
    Apr 2002
    Location
    Texas
    Posts
    14,689
    Post Thanks / WTG / Hug
    Blog Entries
    1
    Rep Power
    38

    Default

    I don't know what to say other than I'm sure it's very hard for you.

  16. #15

    Join Date
    Dec 2002
    Posts
    2,666
    Post Thanks / WTG / Hug
    Rep Power
    0

    Default

    All children touch our lives in different ways.
    I'm glad you feel trust in us to share this information.

Similar Threads

  1. Links for special kids and their parents
    By homesteadmamma in forum Bright Horizons
    Replies: 20
    Last Post: 02-29-2012, 11:22 AM
  2. Parents with special needs kids
    By angelbumpkin in forum Family
    Replies: 3
    Last Post: 09-10-2008, 04:39 PM
  3. Kids' special day--ideas, please
    By Cricket1 in forum General Chat
    Replies: 6
    Last Post: 11-30-2006, 03:51 PM
  4. Time to share about our special kids again
    By homesteadmamma in forum Bright Horizons
    Replies: 1
    Last Post: 09-02-2003, 10:47 AM
  5. Do you over compensate for your special kids
    By homesteadmamma in forum Bright Horizons
    Replies: 3
    Last Post: 08-22-2002, 11:40 PM

Tags for this Thread

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •