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I'm really not sure how to start this letter, I'm not very good at sharing my aches and pains, but I thought if I got it off my chest it might make me feel better..... I haven't felt well for a very long time(years) I have a lousy doctor who has basically ignored me for years and tried to get me to take anti-depressants rather than get to the bottom of what's making me sick...... Finally after a big fight with her the last time she ordered some more tests.... I had an appointment scheduled with her yesterday, but because she is too chickensh*t to tell me in person, she sends me the lab results that say I have something called "Polycythemia Vera" She told me yesterday that she suspected it, but needed further tests done, if that's true, she has suspected it for more than a year...... She couldn't even tell me what to expect from this disease, she said I talk to the specialist.... She is as I said too chickensh*t to tell me.... I already read on it before seeing her. She even talked to me for 15 minutes and it wasn't till I asked her "Do you think I have PV????" That she even mentioned it..... It has a 100% mortality rate, and there are some treatments but no cure. don't you think that may have been worth mentioning........ I haven't talked to the kids, that will come later when I know more, dh hasn't really said anything to me since we found out, he just keeps asking me if I'm alright.... I'm really angry, angry at the doctor, angry at everything......
 

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Master Dollar Stretcher aka AngeleeBob
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Be angry you are more than intitled. I do not know what to say, because nothing I can say will make it better. You and your family are in my thoughts.
 

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I am here for you as I always have been, together we need to learn more about this, what it takes to stay healthy and slow down the symptoms. Lets work on getting you to a real doctor and get to the bottom of this. I love you and want you to know that you are not alone in this.
 

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oh one more thing little sister, there are many diseases that there are no cures for that can be managed. We will just have to find out how to manage yours.
 

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Sending you lots of hugs and keeping you in my prayers.
 

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Hugs, prayers, and positive thoughts coming your way...
 

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Hugs and prayers from me too!!
 

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Lori ~ I just searched this on-line as I've never heard of it and didn't know what it was.

I guess you've already done that yourself? There's LOTS of information and e-mail discussions groups and stuff that may be of help and interest to you?

I'm thinking of you. And I think you have a GREAT sister (and no doubt a wonderful family to support you)

I think you should find a decent doctor you like, and like Robin says there are many diseases with no cures that can be managed.

I hope you find some serenity in the midst of all this new turmoil, I will be thinking of you as always. If you would like to talk ever, please mail me - although I do appreciate you have a wonderful family to talk to.

Lots of Love to you
Bev. xxxxx
 

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Keeping you in my prayers!

Please keep us updated on this...I'll be thinking of you!!
 

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mrscornbread said:
oh one more thing little sister, there are many diseases that there are no cures for that can be managed. We will just have to find out how to manage yours.
That's right and we will all help you fight this thing Lori!:heartsm:
 

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Lori, sweetie, I'm so sorry to hear of this. I must do a search on it as I too have never heard of it. I want you to know like many others have said I'm here for you as well, We WILL find a way of dealing with this.

If you need me just pm me. Sending healing prayers for you.
Love & Hugs
 

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Lori, you are in my thoughts. Lots of :hugz: for you!!

I also agree with Carolyn, PLEASE, PLEASE get another opinion or 2!! Even if you have to travel to a larger city to do it. They are coming up with new medications and treatments everyday, you just have to find the right doctor.
 

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Awe Lori, I'm so sorry and sending you lots of :hugz: and prayers.

I agree with Carolyn, please get a second opinion and from a different doctor.

Were here for you, know that okay.
 

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Lori, :hugz: I don't know what else to add to what everyone else has said, but I want you to know that you are not alone.

Get 2nd and 3rd opinions, AND get rid of the doctor you have!!!

Please keep us posted.
 

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Lori- like all the other said, we are all here for you, and we will always be here to get you through this.

I have also never heard of this disease, but I will definitely do a search on it.

I hope you can find another dr- there is no excuse for her actions, or should I say, lack there of.

Laura
 

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Lori, I also have done an online search for this.
The first thing you need to do is get a second opinion! It sounds to me as if your "DR" can't tell her tush from a pillow!
Get those 2nd opinions! Have the marrow test done, its the only way to confirm her diagnosis. We are all behind you, we love you and we aren't going to let this go with out a fight!
Prayers are going up for you, Please get more help than this person who claims to be your DR!
 

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Lori, We are all here for you honey. I will be keeping you in my prayers. Do you know when you go to the specialist yet? If there is anything I can do please let me know.

We love ya! You are a special wonderful lady and you have an entire Village in your corner. We are going to be your cheering section and you will have 1600+ little angels sitting on your shoulder when you go to the doctor.

:hugz:
Kathy
 

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You are in my thoughts and prayers every day!!!! If you need anything, plmk

:hugz:
 
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